How Your Donation Makes a Difference
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About Campaignends 24 Jun 2022, 11:59 PM
Rare diseases affect fewer than 1 in 2,000 patients, and can be life-threatening without treatment. But where treatment is available, lifespan, and quality of life can be greatly improved.
But such medications can be very expensive - they can cost between tens of thousands to a few hundred thousand dollars annually for a patient, and patients typically require these medications for life. This places a heavy financial burden on the patients and their families, forcing some to almost have to decide between life and death.
You can be a part of this life-saving cause. Help ease the worries of these patients by making a gift to the Rare Disease Fund (RDF).
In support of the RDF and appreciation towards your generous donation, Vertex Holdings will match every dollar of donation, up to $655,000 in total, boosting the impact of your donation. All donations raised through this campaign will go towards the endowed component of the RDF.
Join us in giving our rare disease patients Hope for a Lifetime!
About the Charity
Rare diseases affect a small percentage of the population. But many rare diseases are fatal and genetic - directly caused by changes in genes or chromosomes that affect the body's ability to produce enzymes or biochemical needed for the body to function normally. This means that individuals are usually born with rare diseases, with many of them diagnosed in childhood.
The Rare Disease Fund (RDF) seeks to provide long-term financial support for patients who require high cost medicines - where treatment is available. The RDF is managed by KKH Health Fund (part of SingHealth Fund).
A voluntary RDF Committee has been set up to exercise stewardship over the Fund, approve medicines eligible for RDF support in consultation with clinical experts, and assess patient applications for financial support under RDF.
For more information, please visit https://www.kkh.com.sg/rarediseasefund.
Thank you for giving Rare Disease patients Hope for a Lifetime!
*All donations received are managed by SingHealth Fund (SHF), an institution of a Public Character (UEN 201624016E). Donations must be received by Giving.sg for processing by 31 December 2023 for your 2023 donations to be eligible for a 250% tax deduction of the gift value in YA2024. Thank you for your understanding.