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How Your Donation Makes a Difference

About Us

Rare diseases affect a small percentage of the population. But many rare diseases are fatal and genetic - directly caused by changes in genes or chromosomes that affect the body's ability to produce enzymes or biochemical needed for the body to function normally. This means that individuals are usually born with rare diseases, with many of them diagnosed in childhood.

The Rare Disease Fund (RDF) seeks to provide long-term financial support for patients who require high cost medicines - where treatment is available. The RDF is managed by KKH Health Fund (part of SingHealth Fund).

A voluntary RDF Committee has been set up to exercise stewardship over the Fund, approve medicines eligible for RDF support in consultation with clinical experts, and assess patient applications for financial support under RDF.

For more information, please visit https://www.kkh.com.sg/rarediseasefund.

Thank you for giving Rare Disease patients Hope for a Lifetime!


*All donations received are managed by the SingHealth Fund (SHF), an institution of Public Character (UEN 201624016E). Donations must be received by 31 December 2022 for your 2022 donations to be eligible for a 250% tax deduction of the gift value in YA2023. Donations received after 31 December of the current year will be reflected in the following year.

Our Programmes

Just as every rare disease is unique, so is every rare disease patient. These patients can have a wide range of care needs. While there are existing financial schemes in place to assist them, more support is needed to help with their expensive medicine.

Zecia, who is in her early teens, has Gaucher disease, a rare neurodegenerative condition where her body does not produce an enzyme to get rid of a specific type of fat. This fatty substance can then build up in various organs causing damage. Only a handful of children in Singapore have been diagnosed with this rare ailment. Zecia requires fortnightly enzyme replacement therapy for life, which costs her family more than S$24,000 a month.


The Rare Disease Fund (RDF) seeks to provide long-term financial support for patients with rare diseases requiring treatment with high cost medicines.


Your kind donations* will be a great source of help and support to the patients and their families as they battle these diseases. For every dollar of public donation, the government will match $3, boosting the impact of the fund.

Thank you for giving them Hope for a Lifetime.
SUPPORTED CAUSES
  • Children & Youth
  • Community
  • Families
  • Health
CONTACT US

Christine Gwee

Rare Disease Fund

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