Our Campaign Story

ends 30 Apr 2022, 11:59 PM

Wenjie was born a healthy, happy and smart boy and he is the love of the family. However, when he was a few months shy of turning 7 years old, he was diagnosed with X-linked Adrenoleukodystrophy which robbed him of his independence of daily living.

He is 14 years old now and we love him just as much if not even more. However, caring for him takes the energy of the whole family and we are fortunate to have the support of our family, friends and the rare disease community.

We hope you could contribute generously to support children living with rare diseases, to support us in providing the best care we could for them so that they can lead a meaningful life.

In conjunction with Rare Disease Day on 28th Feb 2022, we will be participating in the Carry Hope 7.7km Challenge 2022 so follow us as we bring Wenjie and HOPE (our sloth mascot) on his daily life to have a glimpse into his world!

About Campaign

Carry Hope 2022 - 7.7km Challenge

Objective: To improve the quality of life for our beneficiaries by raising $100,000 for Home Based Learning and Therapy Support.

Participants will clock in distance of 7.7km, carrying Hope with them during their journey. While doing so, participants will rally their friends to show their support by tagging their donations to them during this fund-raising event.

Why 7.7km?
There have been on record, over 7,000 kinds of rare disorders and many more still being undiagnosed. Rare diseases currently affect 3.5% - 5.9% of the worldwide population.
72% of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative.
70% of those genetic rare diseases start in childhood.
A disease defined as rare when it affects fewer than 1 in 2,000 people.

About The Charity

We know you care because LOVE IS NOT RARE. Individuals with rare diseases form a minority in our society that receive little or no attention. Due to the lack of resources, they may not receive timely and accurate diagnosis, which can cause serious complications including disability and death. The charity understands the fight on a deeply personal level and keeps in mind the needs of this community at all times. Our collective efforts will allow patients to have access to sustainable treatments and live a quality life.

Children & Youth